The juvenile systemic sclerosis clinic: an interdisciplinary approach
نویسندگان
چکیده
منابع مشابه
The juvenile systemic sclerosis clinic: an interdisciplinary approach
Purpose Juvenile Systemic Sclerosis (JSS) is a rare, complex disease. Usually, patients with JSS receive specialized care from a multidisciplinary team in tertiary hospitals. In order to deliver high standard care, systematic clinical practice strategies should be designed. Based on these premises, we developed a JSS Clinic in the year 2008. Objective: To describe the structure and process of a...
متن کامل[Juvenile Systemic Sclerosis].
mento cutâneo, evoluindo para áreas de despigmentação cutânea em ‘sal e pimenta’ (Fig. 1), e aparecimento de úlceras digitais (Fig. 2). Actualmente medicada com metotrexato subcutâneo, metilprednisolona e bosentan. A ESJ tem uma incidência de 0,27 casos por milhão de crianças1 e apresenta particularidades que a distinguem das formas adultas de esclerose sistémica.2 A abordagem terapêutica em id...
متن کاملResolving the food security problem with an interdisciplinary approach
Food is one of the basic human needsand providing it is directly related to food security. The concept of food security in its historical process has been debated from various aspects of physical and economical access to healthy and nutritious food at all times. Food insecurity is considered a complex policy problem with different aspects. This problem requires a network of communication among ...
متن کاملJuvenile systemic sclerosis: review of 15 patients
Results Results: Fifteen patients were identified and included in the analysis, 3 of them were overlap syndromes. Eleven girls (73%), 13 (87%) Caucasians, with a mean age at diagnosis of 11.1±3.0 (3–15) years and a mean disease duration of 7.2±4.2 years (8 months-17 years). In 14 (93%) cases, the first symptom attributable to JSSc was Raynaud’s phenomenon, followed by arthritis and/or puffy han...
متن کاملFactors affecting survival in juvenile systemic sclerosis.
OBJECTIVES To determine whether demographic, clinical and immunological features may predict the outcome in juvenile SSc (JSSc). METHODS Clinical and laboratory characteristics of patients with JSSc collected from paediatric rheumatology centres worldwide were analysed. First, univariate tests identified those features significantly related with fatal outcome, and then multivariate logistic r...
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ژورنال
عنوان ژورنال: Pediatric Rheumatology
سال: 2012
ISSN: 1546-0096
DOI: 10.1186/1546-0096-10-s1-a72